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Why are patient organisations needed?


The main purpose of patient organizations is to protect the rights and legitimate interests of citizens, to carry out educational, awareness-raising, charitable and other activities, to assist and participate in solving problems in the treatment and prevention of diseases and the possible recovery of patients and their families.

Patient organizations are communities of people organized to inform the public about the prevention or suffering from a particular disease. Their duty is to educate the public in order to prevent certain diseases. As a rule, patients' organisations are also involved in helping citizens and patients in the field of health care, educating them and resolving many other issues, for example, defending their interests before anyone, including state and public authorities and institutions, including the courts.

The emergence of patient organisations is a consequence of the fact that medical practice has moved beyond the sole control of doctors and the state. People have developed a desire to make their own decisions about their health and this has begun to undermine the traditional paternalistic approach to medicine.

Previously, it was accepted that doctors were obliged to fully manage the healing process. At best, the patient's personal initiative was perceived as an unnecessary factor and often as harmful, according to some doctors: - "Don't let me treat you!". Over time, the doctor-patient relationship began to change. People began to interfere in the daily practice of medicine. They changed medicine as a type of activity.

Why is it so important to listen to and consider the opinions of patient groups? One reason is enough: medicine must work for the benefit of citizens and patients. A doctor cannot look at illness and treatment from the inside with the patient's eyes. Normal medicine cannot exist without talking to the patient, without taking into account the patient's benefits and comfort.

Patient organizations are involved in patient education and training. This reduces the burden on doctors and creates additional institutions that take on some of the medical functions. These organizations respond to patient queries more flexibly than traditional medical facilities. In this respect, they are also of great benefit to citizens, doctors and patients.

Patient associations protect the interests of people with certain future, current and genetically inherited diseases. Patients' organisations raise the noise around patients' problems, analyse conflict situations, truly defending citizens' rights. This is a very important function, although not always pleasant for doctors and their managers.

Yet another, not the most obvious function of patient organisations is the formation of civil and patient communities, explaining to them the characteristics of different types and groups of diseases. By claiming their existence, by talking about their problems, patients draw the attention of society to many and significant problems. This is how the public dialogue in the field of health is formed. In the process of dialogue, public attitudes and attitudes about problems or disorders towards a disease emerge.

Patients must participate in their own treatment, and physicians must actively encourage them to do so. Ideally, physicians should be aware of the existence of patient organizations that operate in a given city and region according to their pathology profile. Referring a person to such organisations can become a powerful resource for the patient, supporting them and their loved ones in the fight against their disease.

                                                                     Team "InfoHealth"


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